Welcome to Cooley's Anemia Foundation Welcome to the home of the Cooley's Anemia Foundation. This information is for patients and their families, medical personnel, donors, Foundation volunteers, and anyone interested in learning about Cooley's Anemia and other forms of the genetic blood disorder, thalassemia.
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Written by Craig Butler
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Tuesday, 31 March 2009 19:56 |
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March 31, 2009 - HemaQuest Pharmaceuticals announced on March 28, 2009 that it has received two orphan medicinal product designations from the European Commission for its product HQK-1001 for the treatment of sickel cell disease and beta thalassemia. |
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Last Updated ( Tuesday, 31 March 2009 19:59 )
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Written by Craig Butler
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Thursday, 16 April 2009 14:08 |
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April 15, 2009 - CAF and the Child Reach Foundation’s annual “Springtime in New York” Gala is coming April 30. Below are our top 5 reasons why YOU should join us at the festive event. |
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Last Updated ( Thursday, 16 April 2009 14:12 )
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Written by Craig Butler
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Monday, 13 April 2009 19:02 |
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April 13, 2009 - Tina's excited about an upcoming trial. |
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Last Updated ( Monday, 13 April 2009 19:38 )
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Written by Craig Butler
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Tuesday, 31 March 2009 19:41 |
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March 30, 2009 - On October 1, 2008, the Related Donor Cord Blood Program was launched by the U.S. Health Resources and Services Administration (HRSA) and the National Marrow Donor Program (NMDP) to help families in which a first degree relative has been diagnosed with a medical condition that might benefit from a cord blood transplant. |
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Last Updated ( Tuesday, 31 March 2009 19:43 )
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Written by Craig Butler
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Monday, 13 April 2009 20:30 |
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April 13, 2009 - CAF was forwarded the following information from Adept Consumer Testing, a market research firm. |
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Last Updated ( Monday, 13 April 2009 20:36 )
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Written by Craig Butler
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Wednesday, 25 March 2009 16:59 |
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March 25, 2009 - The National Institutes of Health, the National Heart Lung and Blood Institute and the National Institute of Diabetes and Digestive and Kidney Diseases will hold a special thalassemia workshop on May 20 and 21. Entitled "Workshop on Thalassemia: Clinical Priorities and Clinical Trials," the event will be held in Rockville, MD. |
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Last Updated ( Wednesday, 25 March 2009 17:44 )
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Written by Craig Butler
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Monday, 30 March 2009 13:28 |
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March 30, 2009 - The comic strip continues with episode 10. |
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Last Updated ( Monday, 30 March 2009 13:54 )
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Written by Craig Butler
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Thursday, 19 March 2009 14:55 |
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March 19, 2009 – The Thalassemia Action Group (TAG) is planning a mini-conference for patients, family members and healthcare providers for Saturday, April 18, at Children’s Hospital Oakland in California. |
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Last Updated ( Wednesday, 25 March 2009 13:11 )
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Written by Anonymous
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Tuesday, 17 March 2009 19:29 |
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March 17, 2009 - March 14, 2009 started out overcast, the air was a brisk 40 degrees by noon, the water temperature was a chilly 38 degrees but the warm glow of charitable giving made for a perfect beach day. |
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Last Updated ( Wednesday, 18 March 2009 18:11 )
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Written by Craig Butler
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Friday, 20 March 2009 16:00 |
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March 10, 2009 - CAF would like to make patients aware of a new program offered by Novartis that may reduce your Exjade prescription copayments. This program --The Exjade ScriptAssist Program - provides an opportunity for patients to save up to $900 on their Exjade prescription copayments. |
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Last Updated ( Friday, 20 March 2009 20:02 )
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Written by Craig Butler
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Friday, 13 March 2009 19:49 |
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March 13, 2009 - The latest in the series of focus groups which MacroInternational has been conducting for CAF will be held on Saturday, March 14 from 1:00-3:00 p.m. Eastern time. |
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Last Updated ( Monday, 16 March 2009 13:41 )
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