Leading the Fight Against Thalassemia

Leading the Fight Against Thalassemia

CAF Establishes New Gene Therapy RFA Print E-mail
Written by Craig Butler   
Tuesday, 16 December 2008 17:49

December 16, 2008 - The Cooley's Anemia Foundation announces a new RFA in the area of gene therapy for thalassemia.

The purpose of this initiative is to speed the application of recent translational advances in gene therapy to clinical trials.  The foundation recognizes that there are many key areas worthy of support in the search for a cure for thalassemia with cell therapy and gene therapy.  While several funding mechanisms are available for a range of studies on vector development, proof of concept studies in animal models, and transplantation, there remains a funding gap for launching human trials.  Both phase I (safety) and phase II (efficacy) trials are eligible for support.  

Last Updated ( Thursday, 05 February 2009 15:32 )
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Clinical Trials: Why They Are Important for You Print E-mail
Written by Craig Butler   
Friday, 05 December 2008 21:26
December 6, 2008 - In a couple of weeks we’ll all be headed into the whirlwind of activity that comes with the winter holidays and the end of the year. Before you get too caught up in all that wonderful but exhausting activity, CAF wants to ask all thalassemia patients to take some time to think about something that’s important to everyone with thalassemia: participating in clinical trials.

Last Updated ( Thursday, 08 January 2009 15:33 )
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Thal Pals -Episode 2 Print E-mail
Written by Craig Butler   
Thursday, 04 December 2008 17:01

episode 2 of ThalPalsTHAL PALS                                 Text: Craig Butler     Art: John Thornton         Copyright 2008 Cooley's Anemia Foundation

Currrent episode (December 8, 2008)

Funding for Thal Pals comes from an unrestricted educational grant from Novartis Pharmaceuticals.

Last Updated ( Thursday, 08 January 2009 15:37 )
 
CAF Comic Strip Debuts Print E-mail
Written by Craig Butler   
Monday, 24 November 2008 14:15

November 24, 2008 - CAF launches its new online comic strip, "Thal Pals," today.  The first episode of the strip can be seen below.  New episodes will be posted every other Monday.  (Story continues after comic strip.)

THAL PALS                                 Text: Craig Butler     Art: John Thornton         Copyright 2008 Cooley's Anemia Foundation 

Thal Pals episode one

Last Updated ( Thursday, 08 January 2009 15:37 )
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Arthur Bank Book on Thalassemia to Be Published Print E-mail
Written by Craig Butler   
Tuesday, 18 November 2008 16:53

November 17, 2008 - Arthur Bank, Professor Emeritus of Medicine and of Genetics and Development at Columbia University and a longtime leader in thalassemia research, has written a new book, “Turning Blood Red: The Fight for Life in Cooley’s Anemia,” which is being published by World Scientific Books.   

Last Updated ( Wednesday, 19 November 2008 19:30 )
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CAF Medical Research Grants and Fellowships Available Print E-mail
Written by Craig Butler   
Tuesday, 18 November 2008 15:49

November 4, 2008 -

COOLEY’S ANEMIA FOUNDATION

RFA FOR TRANSLATIONAL RESEARCH IN ADULT THALASSEMIA

And

RESEARCH FELLOWSHIP APPLICATIONS 

Last Updated ( Tuesday, 18 November 2008 16:29 )
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Interview with Dr. Hani Atrash of the CDC Print E-mail
Written by Craig Butler   
Wednesday, 29 October 2008 14:43

October 29, 2008 - Dr. Hani Atrash became Director of the Division of Blood Disorders at the Centers for Disease Control and Prevention (CDC) in June, 2008. CAF recently interviewed Dr. Atrash about his work with the CDC and how it relates to the thalassemia community.

Last Updated ( Thursday, 30 October 2008 17:21 )
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Patient, CAF President on Long Island TV Program Print E-mail
Written by Craig Butler   
Thursday, 30 October 2008 13:20

October 29, 2008 - Michael Giammalvo, who has thalassemia, and Anthony Viola, the CAF National President, will be the guests on Empowered Voices, a cable television program airing in areas of Long Island, airing for several consecutive Thursdays, starting October 30.

Last Updated ( Monday, 03 November 2008 21:32 )
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Patient Receives Award from Blood Service Print E-mail
Written by Craig Butler   
Wednesday, 29 October 2008 19:04

Gracie Blood DropOctober 14, 2008 - Gracie Scollo of Brooklyn was recently presented with a special award from New York Blood Center in appreciation of her outstanding efforts to increase both blood donations and awareness of the need for blood donations.  

Last Updated ( Thursday, 30 October 2008 16:44 )
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Tony LoBianco in One-Man Show About LaGuardia Print E-mail
Written by Craig Butler   
Wednesday, 15 October 2008 19:17

October 2, 2008 - CAF friend and support Tony LoBianco is starring in a one-man show about Fiorello LaGuardia.  Below is a letter from Mr. LoBianco about this new show.

 

Last Updated ( Wednesday, 22 April 2009 17:08 )
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Westchester-Rockland Chapter Reports on Activities Print E-mail
Written by Craig Butler   
Friday, 26 September 2008 18:36

 

The Pep SquadSeptember 26, 2008 - The Westchester-Rockland chapter of CAF has been busy recently. Following is a report on recent and upcoming activities from Janet Manning.

Last Updated ( Wednesday, 29 October 2008 15:31 )
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