Welcome to Cooley's Anemia Foundation Welcome to the home of the Cooley's Anemia Foundation. This information is for patients and their families, medical personnel, donors, Foundation volunteers, and anyone interested in learning about Cooley's Anemia and other forms of the genetic blood disorder, thalassemia.
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Written by Craig Butler
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Thursday, 25 February 2010 15:02 |
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February 25, 2010 - A "Beef & Beer" benefit will be held Saturday, April 24, from 7:00 pm - 11:00 pm at the L.R.B. Sons of Italy in Ambler, PA. |
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Last Updated ( Tuesday, 02 March 2010 16:36 )
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Written by Craig Butler
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Friday, 26 February 2010 14:38 |
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February 26, 2010 - Want a swinging way to fight thalassemia? Come swing a few clubs at the Staten Island chapter's 2010 Charity Golf Outing on April 28. |
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Last Updated ( Friday, 26 February 2010 15:05 )
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Written by Craig Butler
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Thursday, 25 February 2010 16:46 |
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February 25, 2010 - "Switching Globin Genes On and Off: Lessons from Thalassemia" is the title of a lecture to be given Tuesday, March 2 at 4:00 p.m. at the New York Blood Center. |
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Last Updated ( Friday, 26 February 2010 14:58 )
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Written by Craig Butler
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Thursday, 25 February 2010 14:04 |
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February 24, 2010 - Medical researchers are developing a new surveillance system to determine the number of patients diagnosed with a family of inherited blood disorders known as hemoglobinopathies, including sickle cell disease, thalassemias, and hemoglobin E disease. |
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Last Updated ( Thursday, 25 February 2010 14:17 )
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Written by Craig Butler
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Friday, 12 February 2010 16:52 |
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February 12, 2010 - Time to don those pearls and that little black dress (ladies) or that to-die-for blazer (men) and hurry on to the Long Island chapter's blissful "Brunch at Tiffany's" on March 21. |
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Last Updated ( Friday, 12 February 2010 21:09 )
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Written by Craig Butler
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Monday, 08 February 2010 18:54 |
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February 8, 2010 - Q: What is frozen on the outside, warm and cozy on the inside and a big help to CAF? |
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Last Updated ( Tuesday, 09 February 2010 20:08 )
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Written by Craig Butler
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Friday, 05 February 2010 15:31 |
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February 5, 2010 - A study published online by BioMed Central Blood Disorders investigates the quality of life (QOL) among children with thalassemia in Thailand. |
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Last Updated ( Wednesday, 10 February 2010 15:00 )
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Written by Craig Butler
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Thursday, 28 January 2010 18:58 |
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January 27, 2010 - Videos of two presentations from the 9th Cooley's Anemia Symposium are now available for viewing. The subjects are pulmonary hypertension and clinical trials. |
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Last Updated ( Tuesday, 09 February 2010 22:04 )
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Written by Craig Butler
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Tuesday, 19 January 2010 19:49 |
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January 19, 2010 - The odds are solidly in your favor that you will have a wonderful time at the Westchester/ Rockland chapter's "Night at the Races" on March 6. |
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Last Updated ( Tuesday, 19 January 2010 19:53 )
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Written by Craig Butler
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Tuesday, 19 January 2010 14:19 |
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January 19, 2010 - Pulmonary hypertension is a complication that occurs in some individuals with thalassemia. (Although it can occur in both thalassemia major and thalassemia intermedia, it is considered by CAF Medical Advisory Board Chair Ellis Neufeld to be a big problem in adults with intermedia and of possible rising significance in adults with major as they age.) Below, CAF speaks with Claudia R. Morris, MD, of Children’s Hospital and Research Center Oakland about pulmonary hypertension and thalassemia and about some current clinical trials in this area. These trials, which include a multi-center Thalassemia Clinical Research Network trial, are ongoing and are currently recruiting subjects. |
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Last Updated ( Friday, 29 January 2010 19:09 )
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Written by Craig Butler
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Tuesday, 19 January 2010 16:14 |
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January 16, 2010 - Several college students who are participating in the Arizona Rock'n'Roll Marathon are using the opportunity to raise funds for the fight against thalassemia. |
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Last Updated ( Tuesday, 19 January 2010 16:31 )
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