Leading the Fight Against Thalassemia

Leading the Fight Against Thalassemia

Thalassemia Around the World: Egypt Print E-mail
Written by Craig Butler   
Tuesday, 10 November 2009 19:50

November 10, 2009 - At the recent 9th Cooley’s Anemia Symposium, representatives from CAF had the pleasure of meeting Dr. Mona Hamdy Mahmoud, Associate Professor of Pediatric Hematology at Cairo University in Egypt.  Dr. Mahmoud, who has worked in the thalassemia unit for 15 years, agreed to answer some questions about thalassemia in Egypt.

Last Updated ( Tuesday, 10 November 2009 20:33 )
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OSIA Lodge Scares Up Treat for CAF Print E-mail
Written by Craig Butler   
Tuesday, 10 November 2009 15:22

November 9, 2009 - Some Long Island ghosts and goblins scared up a nice treat for Cooley’s Anemia Foundation this Halloween, courtesy of the Per Sempre Ladies Lodge of the Order Sons of Italy in America (OSIA).

Last Updated ( Tuesday, 24 November 2009 19:03 )
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CAF Presentations at Symposium Print E-mail
Written by Craig Butler   
Wednesday, 28 October 2009 16:35

October 28, 2009 - The 9th Cooley's Anemia Symposium, held by CAF in conjunction with the New York Academy of Sciences October 21-24, was an invigorating experience, details of which will be forthcoming.  CAF itself supplied two posters and a "Data Blitz" presentation on subjects of interest to the thalassemia patient community.

 

Last Updated ( Monday, 02 November 2009 18:39 )
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Thal Pals Comic #25 Print E-mail
Written by Craig Butler   
Thursday, 05 November 2009 18:41

November 5, 2009 - Vikram's cousin comes for his first comprehensive care evaluation.

Last Updated ( Friday, 13 November 2009 21:43 )
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Report on CAF Focus Groups Print E-mail
Written by Craig Butler   
Wednesday, 21 October 2009 15:40
October 21, 2009 - During the winter and spring of 2009, CAF, in collaboration with the Centers for Disease Control and Prevention and Macro International, conducted a series of focus groups to explore barriers and facilitators to treatment adherence among people with thalassemia and their caregivers.  The report on those groups may be downloaded by clicking here.
Last Updated ( Wednesday, 21 October 2009 15:43 )
 
CAF Research Fellowships And Grant Applications Available Print E-mail
Written by Craig Butler   
Wednesday, 21 October 2009 15:33

October 20, 2009 - The Cooley’s Anemia Foundation is accepting applications for its translational research in adult thalassemia program, for gene therapy and for its medical research fellowship program.

Last Updated ( Tuesday, 27 October 2009 17:12 )
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Thal Pals Comic #24 Print E-mail
Written by Craig Butler   
Tuesday, 13 October 2009 17:19

October 12, 2009 - Perry wants to give blood for his friend Vikram.

Last Updated ( Friday, 13 November 2009 18:14 )
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New Jersey Events Raising Funds for CAF Print E-mail
Written by Craig Butler   
Thursday, 01 October 2009 14:28

September 30, 2009 - Residents of the fabled Garden State helped support CAF by attending two fund raisers in recent weeks.

Last Updated ( Monday, 02 November 2009 16:19 )
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November 7 - Gift of Life Ball in Long Island Print E-mail
Written by Craig Butler   
Friday, 30 October 2009 16:16
October 29, 2009 - A quick reminder: If you're in the NYC area, give yourself a special gift on November 7 and head out to Leonard’s of Great Neck.  You don’t want to miss the 49th Annual Gift of Life Ball, thrown by the Long Island and Brooklyn chapter of CAF.
Last Updated ( Friday, 30 October 2009 18:55 )
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Chicago Chapter Has "Bocce for Cooley's" Event Print E-mail
Written by Craig Butler   
Wednesday, 14 October 2009 20:06

October 12, 2009 - Get your bocce arm in shape - and go bowling for CAF!

Last Updated ( Thursday, 15 October 2009 13:39 )
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FDA Committee Meeting to Review Ferriprox Cancelled Print E-mail
Written by Craig Butler   
Wednesday, 30 September 2009 13:15

September 29, 2009 - The meeting was scheduled for October 6.

Last Updated ( Wednesday, 30 September 2009 13:18 )
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