Leading the Fight Against Thalassemia

Leading the Fight Against Thalassemia

Rare Disease Coalition Invites You to Show Support in NYC on September 8 Print E-mail
Written by Craig Butler   
Thursday, 02 September 2010 14:36

September 1, 2010 - The Global Genes collaborative initiative invites rare disease supporters to help promote rare disease awareness on the morning of Wednesday, September 8 in New York City.

 

Last Updated ( Thursday, 02 September 2010 14:51 )
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9th Cooley's Anemia Symposium Subject of Latest Annals of NYAS Print E-mail
Written by Craig Butler   
Thursday, 02 September 2010 14:07

August 30, 2010 - The August, 2010 issue of the Annals of the New York Academy of Sciences (NYAS) is a record of the CAF-sponsored 9th Cooley's Anemia Symposium held October 21-24, 2009 in New York City. 

Last Updated ( Thursday, 02 September 2010 14:59 )
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Blood Drive August 29 in St. James, NY Print E-mail
Written by Craig Butler   
Friday, 20 August 2010 13:46

August 19, 2010 - A blood drive will be held on August 29 from 10:00 a.m. to 6:00 p.m. at Tru Salon, 437A North Country Rd (25A), in St. James, NY.

Last Updated ( Friday, 20 August 2010 13:54 )
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Action Alert: Support the Improving Access to Clinical Trials Act Print E-mail
Written by Craig Butler   
Wednesday, 18 August 2010 16:50

August 18, 2010 - The  U.S. Senate has approved S. 1674, the Improving Access to Clinical Trials Act and it is now in the hands of the U.S. House of Representatives.  CAF supports this bill, which makes it possible for people with Supplemental Security Income (SSI) to participate in clinical trials for rare diseases (such as thalassemia) without risking their SSI eligibility.

Last Updated ( Wednesday, 18 August 2010 17:49 )
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Interview with Laurice Levine, New TAG President Print E-mail
Written by Craig Butler   
Tuesday, 10 August 2010 18:33

August 10, 2010 - CAF speaks with Laurice Levine, new TAG (Thalassemia Action Group) President.  TAG is the patient support group that promotes a positive attitude toward life, stresses the importance of compliance and chelation therapy and provides patients with a channel of communication and information.

Last Updated ( Monday, 16 August 2010 17:54 )
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NJ Elks Donate $10,000 to CAF Print E-mail
Written by Craig Butler   
Thursday, 19 August 2010 19:51

August 16, 2010 - At their annual convention this summer, the New Jersey Grand Lodge of the Benevolent & Protective Order of the Elks made a generous donation to the Cooley's Anemia Foundation.

Last Updated ( Thursday, 02 September 2010 15:07 )
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One Patient's Story: Living with and Learning from Thalassemia Print E-mail
Written by Craig Butler   
Thursday, 12 August 2010 13:35
August 12, 2010 - High school student Aaron Cheng shares a speech about thalassemia which he recently delivered to his classmates.  We share this inspiring testimony with you below. 
Last Updated ( Wednesday, 18 August 2010 15:20 )
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Staten Island Chapter to Hold Seminar at Health Expo Print E-mail
Written by Craig Butler   
Monday, 16 August 2010 15:22

August 16, 2010 - The Staten Island chapter of CAF will hold a seminar on thalassemia at a September 28 Health and Wellness Expo in Staten Island, NY.

Last Updated ( Monday, 16 August 2010 15:39 )
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Donate to CAF Now and Your Gift Will Be Matched Print E-mail
Written by Craig Butler   
Wednesday, 04 August 2010 14:27

August 4, 2010 - The Board of Directors of CAF will match any donations made to CAF between  now and September 15, 2010 - which means the money you donate will do TWICE as much good.

Last Updated ( Monday, 16 August 2010 15:27 )
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Car Donations Can Benefit CAF Print E-mail
Written by Craig Butler   
Thursday, 22 July 2010 16:48
July 22, 2010 - Getting rid of your old car?  Donate it to CAF and help in the fight against thalassemia!
Last Updated ( Tuesday, 27 July 2010 21:15 )
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Massachusetts Chapter Dinner Dance/Silent Auction Set for September 25 Print E-mail
Written by Craig Butler   
Wednesday, 11 August 2010 13:18

August 11, 2010 - The Massachusetts chapter of CAF will hold its 23rd Annual Dinner Dance & Silent Auction on Saturday, September 25, 2010 from 6:30 p.m. - 11:30 p.m. at the Hellenic Cultural Center in Watertown, MA.

Last Updated ( Wednesday, 11 August 2010 13:35 )
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